Sep 4, 2009


CONGENITAL HEART DEFECT
Somewhere....someplace...today....
A family is waiting to hear.....
Is something wrong with their baby?
The answers aren't quite clear...
This family has entered an unwanted world...
And they just don't know what to expect...
Somewhere...someplace...today
They first heard the words: heart defect.
And how they hoped this was not true...
And thought...this cannot be...
I too...know just how this feels..
This happened to ME...
Somewhere...someplace...today...
A man and a woman embrace...
Their baby is in surgery...
They long to see her face...
They haven't got to hold her yet...
Without...a cord or line...
They pace the room awaiting news...
And hope she'll be just fine.
Prayers fill this busy waiting room..
And mom and dad are scared...
Somewhere...someplace..today...
The tiniest hearts are repaired.
Somewhere...someplace...today...
A child's growing fast...
Smiling, laughing, thriving...
Her mom thinks...can this last?
It's almost easy...to forget
That anything is wrong...
Somewhere...someplace...today...
Her child seems so strong.
Somewhere...someplace...today...
A little girl fights...just to live...
A father holds her tiny hand...
His love...all he can give...
The doctor's are all baffled...
They fear that she might die...
Somewhere...someplace...today...
A family says goodbye...
Somewhere...someplace...each year...
More than 40,000 families will see...
What it means...when something's wrong...
They'll face a CHD.
Today...for just a moment...
Stop...remember...reflect...
My life has been forever changed by a heart defect.
                                               -author unknown
I've read this poem time and time again, each time it weighs heavily on my mind. I want to know all that I can about my child and what will happen. I wonder how things will be, what will happen to my daughter while we are caring for my son. I wonder what my son will look like and I am so scared to see him laying in that hospital bed. I guess it's starting to set in ... This is actually happening to us. 

1 comment:

  1. Yep its happening to you. I know that feeling and it feels pretty helpless. But you are stonger than you know and he will heal so much faster than you even think possible. Before you know it they are going to be telling you to come and take him home. Lexi was 5 days post op, it sounds like he will be a little longer, But you will be amazewd how fast its going to go. Him being in the hospital is going to be hard but you will be amazed how fast you will get into a hospital routine. There is alot of machines and tubes and nurses and doctors. But it won't be long before you understand everything. Please remember that Andy and I are here for you guys and we will answer as many questions as you want to throw at us. We survived and you will too! We love you guys!

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